Its great to see a charity where all their staff are so invested and attentive to those also wanting to help - Grace Hackett, Alderwood Recruitment

From our Board of Trustees to our Staff, Action Duchenne is led by a diverse group of Duchenne families.

We are passionate about giving people living with Duchenne longer and more enriched lives. 

Board of Trustees


Advocates & support

Family stories

I ran the Brighton marathon to raise money for Action Duchenne.  The team were supportive and encouraging from the moment I entered and fundraising for such a worthy cause has been an absolute pleasure. I couldn’t have crossed that finish line without the training advice and support received. - Rachel Murrant

Call us 020 7250 8240