The AD team are wonderfully friendly and accommodating and as some of them invariably take part alongside you, you know they appreciate the effort you are putting in.  It’s also great to meet other families affected by Duchenne. - Nicole Greenfield-Smith (Aunt)

From our Board of Trustees to our Staff, Action Duchenne is led by a diverse group of Duchenne families.

We are passionate about giving people living with Duchenne longer and more enriched lives. 

Board of Trustees


Advocates & support

Family stories

I ran the Brighton marathon to raise money for Action Duchenne.  The team were supportive and encouraging from the moment I entered and fundraising for such a worthy cause has been an absolute pleasure. I couldn’t have crossed that finish line without the training advice and support received. - Rachel Murrant

Call us 020 8556 9955