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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Community Summit
    • Action Duchenne Community Summit 2026 (Previously International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Membership 79

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Membership 79

This World Duchenne Awareness Day, show your support by choosing to join the Duchenne community now and into the future. Children, young people and their families live with Duchenne every single day. While awareness days create much-needed opportunities for advocacy and increased understanding, these families need our support for their whole journey. They need increased funding for treatments. They need a more inclusive society. They need support for the entire family as they navigate this devastating diagnosis. They need hope for a better future.

This World Duchenne Awareness Day, become an Action Duchenne Member by giving a monthly donation. Help us be there every day for families who need us. Help us change their future.

As a member we will

  • keep you up to date on the impact your support is having at our members-only quarterly online meetings
  • invite you to voice your opinion, ask questions and vote on issues of key importance to the running of Action Duchenne
  • automatically enter members into our giveaways and competitions 
Become an Action Duchenne Member

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From our community

Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …

Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it”  Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

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Action Duchenne
5th Floor, Mariner House
62 Prince Street
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BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

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