By Victoria Young
If you had told me 8 months ago that I would be a Support and Engagement Coordinator at Action Duchenne I really wouldn’t have believed you.
First of all I had never heard about Duchenne until the 21st July 2020 when I was told that my son, Dougie, was very likely to have it. For several weeks after this I broke down. But the sheer determination I had to make sure he and our family could live the best life possible helped me start to get back to things.
In September 2020 we had the genetic test result confirm that he had Duchenne. To all newly diagnosed families; I want you to know that the Duchenne community is absolutely amazing, you are not alone, support is always here. Do get in touch with us at info@actionduchenne.org
The passion behind the work that Action Duchenne does shines through, and it is such a pleasure to be part of it. In my first few weeks I have really enjoyed learning about all the exciting events happening and have really enjoyed speaking to families.
Our lovely National Director, Florence, is taking part in the Vitality London 10,000. So for those of you who want to do something extra special on their May bank holiday you can sign up and run for Action Duchenne.
Stay safe and speak soon
Victoria
The Spires Federation school fundraising
