Online Event for Newly Diagnosed Families
Has your family had a recent Duchenne diagnosis? Are you feeling lost, alone and overwhelmed? Would you like a way to gain crucial knowledge, ask your questions, meet our support team and connect with others in a similar situation?
We want to invite you to our Newly Diagnosed Family Online Event. This free event takes place via Zoom on Saturday 21st October, 2-5pm. It will be hosted by our Outreach Officer Alex as well as other members of the Action Duchenne team who can’t wait to meet you and support you through every part of your Duchenne journey.
Perfectly timed to be three weeks before the main Action Duchenne Conference, 10th & 11th November in Leicestershire. Get up to speed with ‘the basics’ at this online session. Make connections and new friends. Refresh your memory so that you can absorb as much as possible at the unmissable in-person event.
Who will benefit from attending;
- newly diagnosed families (parents, carers, grandparents, friends)
- families starting their learning journey in Duchenne
- families’ teams (school, nursery, physios, OTs, care advisors)
- anyone feeling overwhelmed ahead of attending the in-person conference
Agenda
- What is Duchenne – an introduction
- Current treatment options
- Adapting to the diagnosis
- Protecting mental health and well-being
- Accessing the wider world
- Life without limits
- How Action Duchenne can support you
- What to expect at the Action Duchenne International Conference
Register here for your FREE place.
The Annual Action Duchenne International Conference 2023 will be held on the 10th and 11th November and is an amazing opportunity to meet with those involved in every aspect of Duchenne, from families, clinicians, researchers and pharmaceutical companies. Tickets are FREE for Duchenne families as well as everyone living with Duchenne AND there is a £100 grant available for Duchenne families towards travel and accommodation. Book your place now.
