Parent and expert lead sharing experiences and advice with learning and behaviour

December 13, 2022 by Robbie Handley

“Making contact with Action Duchenne provided a lifeline”

“Making contact with Action Duchenne provided a lifeline”: Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry was diagnosed with Duchenne muscular dystrophy in 2019 Ben and his wife have 3 children: a daughter in year 3 and a son in his first year of university and Harry, …

The Power of Shared Experience: “Honestly, it would’ve been a much harder road without having joined this group.”

Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to enable connection with those who truly understand. A Duchenne diagnosis can often set people apart from the support systems they usually rely on. Our support groups mean you can meet people who know exactly …

Guest Blog: Birthday Boy

By Jack Waddington We are pleased to feature a very special guest blog for World Duchenne Awareness Day 2025. This blog has been written by Jack Waddington. Jack’s younger brother Sam lived with Duchenne after he passed away, Jack has written a memoir about growing up with him. In his own words, “it’s about the …

Parent and expert lead sharing experiences and advice with learning and behaviour

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