Recognising early signs of Duchenne videos featured on BBC Look North

One of our wonderful families were featured in the news this week, as 7 year old Oliver and his Mum, Alix were interviewed by BBC Look North.

Watch from 10:43 to jump straight to the segment. 

Alix, Ross and the entire family have thrown themselves into fundraising following Oliver’s diagnosis, unshakeable daredevil Ross has not only taken on the Arcellormittal Orbit abseil but has also swam with sharks, along with Auntie Genevieve! Grandmother Von is an unstoppable force in her local community, raising awareness at every opportunity, her recent ‘Name The Teddy’ stall went down a storm at her local garden centre with ‘Pippin’ finding a loving home with the lucky winner!  Even Oliver himself gets involved, and recently made a killing at his fabric stall at a local market, well done Oliver!

Thank you Oliver, Alix, Ross and your whole family for supporting us and for representing the entire Duchenne community so eloquently in the interview, we’re so proud to have you with us. 

Further reading

• Get help and support

• Read family stories

• Blog