Marion Main, expert Duchenne physiotherapist from Great Ormond Street Hospital shares her decades of expertise, covering important topics in the order below;
- Introduction from Lynnette Ellison, Community Fundraising & Support Officer at Action Duchenne
- Activity and inactivity (the effects from lockdown)
- Reduced mobility and how to help
- Physiotherapists and OTs in school
- Changes to priorities in seating and physio needs
- Social isolation and effects on the immune system (how to help)
- Signs of deterioration, inactivity and growth
- Adaptations, wheelchairs
- Returning to in September to build immunity before flu season
- Cough assist and Aerosol Generated Procedures
- COVID-19 in excrement
- PPE and fit testing
- Getting over the fear
- What to do if you think anyone in your family has COVID-19
- Orthotics, getting back into action
- Building your team back around you to review what is the priority NOW
- Considering starting at reduced hours at school, building up to full time
- Seeking help for your stress, sibling and other children
- Avoiding sitting for a long time
- Children wearing masks/visors
- Minimising risk vs living and building up physicality
- Hydrotheraphy
- Horseriding
- Tightness in the hips, flexors
Watch now
Who will benefit from watching the session?
- Parents & carers of children and young people with Duchenne muscular dystrophy
- Professionals involved in the care of young people with Duchenne
- Teachers and 1-2-1 TAs
- Community physiotherapists
- Community occupational therapists
About the expert
Marion Main is long-standing friend of Action Duchenne and regular presenter at our Annual International Conference. Marion has an absolute wealth of knowledge from her role as Physiotherapist at world-renowned neuromuscular centre of excellence, Great Ormond Street Hospital for Children. Her presentations are always engaging, fun and interactive, sharing her vast experience in an easy to understand way.
Taking action and making an impact
