We are working with PTC Therapeutics to get answers to important questions about transition from paediatric to adult care. PTC would like to find …
Harry Hill invites you to our online event
Launching new ‘Music & Me’ podcast
Our new podcast, 'Music & Me' is an interview series featuring talented musicians from across all genres. Broadcaster and proud Ambassador, Jonny …
Living with Duchenne at 42 with Bryan Purdue
Bryan talked about his life, family and friends, making decisions, positivity, aspirations, achievements, going to University, the world of work, and …
Hope, music and making things happen despite Duchenne
By Alex JamesHello everyone, I hope you are all very well. This vlog was specially requested by Action Duchenne of me in the flesh, talking …
Hope, music and making things happen despite DuchenneRead More
Adult physiotherapy webinar with Marina Di Marco – RECORDING
Thank you to everyone who joined us online last night for our FREE webinar with Marina Di Marco, Principal Neuromuscular Physiotherapist at Queen …
Adult physiotherapy webinar with Marina Di Marco – RECORDINGRead More
Internships
We have been offered a number of paid internships for young people living with Duchenne. The positions are available this summer across a range of …
