Recorded on 9th March, coinciding with International Women’s Day, this webinar shines a light on the often-overlooked health needs of Duchenne carriers.
Women carrying the Duchenne gene often experience having their symptoms dismissed or unrecognised, creating uncertainty around the care they require. This session addresses that gap head-on — covering cardiac screening, symptom awareness, and practical care guidance — equipping carriers with both the knowledge and the validation they deserve.
Presented by Uruj, founder of Saiyna Therapy, accredited BACP Psychotherapist, and former Genetic Counsellor, whose unique expertise sits at the intersection of mental health and complex genetic conditions.
Make sure you don’t miss any of the webinars in the series. Register your interest below and we’ll make sure you’re kept informed about dates, speakers and registration details.
Edgewise Therapeutics Announces Long-Term Sevasemten Data in Becker Muscular Dystrophy
