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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub
You are here: Home / Work for Good

Work for Good

Action Duchenne has joined Work for Good, an online platform that makes it easy for small businesses to support our life-changing work.

How to get involved

The team at Work for Good are on hand to support you every step of the way.

  • Your business has the power to make a positive impact, whatever you do and whatever your size.
  • Whether you’re a sole-trader or small business. Work for Good have made it easy for you to support Action Duchenne.
  • They take care of the legal requirement that is needed for sales fundraising, known as a Commercial Participation Agreement, leaving you to get on with what you do best.
  • By raising funds through your sales, you can sustainably support Action Duchenne and make a real difference.
  • Work with purpose. Work for good.
Find out more and start fundraising now

From the first phone call, I felt completely understood and supported. Speaking to other DMD parents who work for Action Duchenne has truly been a lifeline for me, and they have never wavered in their support and patience

Lizzie | Duchenne Mum | Member

Our impact

We are proud to bring you an update of the work we are doing here at Action Duchenne, and to explain the tangible progress we are making.

These past few months we have started delivering key parts of the ‘All-through Support’ project, including; 

  • support webinar double-bill on trauma and bereavement
  • over 600 1-2-1 support calls and meetings with Duchenne families in the past 6 months
  • carefully ‘match-making’ Duchenne families with others in a similar position
  • hosting The Friday Hive, an open, drop-in peer-to-peer support group on Fridays 10-12 during term time
  • planning the transition to adulthood project
  • new team-mates have joined our ranks; Alex (Outreach Officer) and Dr Mehreen (Chief Scientific Officer) 
  • collaborating with partner organisations, both from within the Duchenne community and from other specialised areas. 

Earlier this month, we were proud to solidify our status as an agile charity, by announcing an increase in our expenditure on charitable activities to 88.7p in every £1 we raise!

This is a great achievement for us, and one that sets us apart from other charities which may be struggling following the pandemic’s devastation to the third sector. 

Donations we receive are vital to help Action Duchenne bring our life-changing work to more and more people across the UK.

Your support will enable Duchenne families to attend important support and education events like the Conference and Science Education Programme, take part in our transition to adulthood residential and access our world-class support services as soon as they are diagnosed. And help us to achieve our vision ‘a world where lives are no longer limited by Duchenne muscular dystrophy’
 

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From our community

Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it”  Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

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Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

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© Action Duchenne - Registered Charity No 1101971 - Scottish Charity No SC043852