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  • Challenge 79 for World Duchenne Awareness Day
  • About Us
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    • The DMD Registry
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    • Support for 14-25 yrs ‘Yes I Can’
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Winter Webinar – Kirsten Jack

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Winter Webinar – Kirsten Jack

January 11, 2024 by Lizzie Cox

Winter Webinar – Kirsten Jack

As part of our ongoing Science Education programme, we are running a series of Winter Webinars with some of your favourite Duchenne experts!

We are delighted to announce that our second webinar will be held by Kirsten Jack, expert in neurodiversity and co-founder of Uncommon, a social-impact company that helps neurodivergent young people build confidence and manage their wellbeing.

Kirsten will introducing the concepts of neurodiversity and discuss how neurodivergent (autistim and adhd) young people think differently. She’ll explain how this can present as ‘spiky profiles’, where young people can be exceptionally adept in some skill areas, but still struggle day to day with things that their peers find easy.

She will provide a short guide on how to explore your child’s neurodiversity, so you can work together as a family to support your child in a way that works for them and will be also happy to answer any questions about the diagnosis process for those awaiting diagnosis.

Register here

Want to know more? 

Our Science Live videos are bite-sized Duchenne science, split into different sections and presented by our Science Communications team in an accessible way that’s easy to share with family, friends and care teams.

Bite-Sized Duchenne Science

Save the Date

The Annual Action Duchenne International Conference 2024 will be held on Friday 8th and Saturday 9th November 2024.

Action Duchenne would like to thank the following sponsors who have provided financial support for this project but have no involvement in this project: HM Government (in partnership with the National Lottery Community Fund), Pfizer, PTC Therapeutics, Roche, GWF, Sarepta Therapeutics and all the individuals who made their contributions to make this project happen.

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