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Action Duchenne

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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • In-Person Support Events
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us

Friends of Action Duchenne

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Become a Friend of Action Duchenne so we can be there for EVERY family EVERY time. 

Become an AD Friend

Every week, two UK families learn their child has Duchenne Muscular Dystrophy, a diagnosis that turns their world upside down. 

Yet, amidst the fear and uncertainty, there is hope. Action Duchenne exists to guide families through the hardest days, connect them to a community that understands, and provides the knowledge they need to move forward. 

By becoming a Friend of Action Duchenne, your monthly gift ensures we can keep that hope alive every day, for every family.

Your support matters every month 

When you commit a small amount each month, it gives us the financial stability we need to plan ahead, rather than always chasing one-off funds. 

Did you know that a monthly gift of: 

£5 a month could help fund a family’s travel costs to attend our conference, making it accessible to all budgets 

£10 a month could develop a bitesize science video to provide insight and understanding to our community 

£15 a month could put a Duchenne family member through an 8-week counselling course 

£25 a month could put a child or young person with Duchenne through a mentoring course to build their confidence and positivity 

£50 a month could help to fund 6 young people with Duchenne to attend a 10-session program to meet their peers, make friends and learn more about equity and inclusion 

Hear from our team what impact your donation could make:  

What does it mean to be an Action Duchenne Friend?  

  • You will receive regular updates on our progress, including the impact your donation is allowing us to make on families and communities all around the UK.  
  • Invitation to exclusive online events to hear more about our work 
  • Early access to tickets to our coveted annual conference 

When you’re an Action Duchenne Friend, you are part of something bigger, you are impacting a whole community.  Your support can help us to change lives.  

Become an AD Friend
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From our community

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

“Making contact with Action Duchenne provided a lifeline”

“Making contact with Action Duchenne provided a lifeline”: Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry was diagnosed with Duchenne muscular dystrophy in 2019 Ben and his wife have 3 children: a daughter in year 3 and a son in his first year of university and Harry, …

The Power of Shared Experience: “Honestly, it would’ve been a much harder road without having joined this group.”   

Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to enable connection with those who truly understand. A Duchenne diagnosis can often set people apart from the support systems they usually rely on. Our support groups mean you can meet people who know exactly …

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Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

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