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Action Duchenne

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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with Others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us

Give in memory and help us support every family, every time.

You are here: Home / Give in memory and help us support every family, every time.

A Meaningful Tribute 

Making a donation, fundraising, or creating a tribute fund is a powerful way to remember your hero. Their name and kindness will live on through the support we provide to families across the Duchenne community. 

Ways to Give in Memory 

Funeral or Memorial Collection 
Invite loved ones to donate in lieu of flowers. Download our QR code and add this to your order of service. Once scanned, a donation in memory can be made through our website.

Create a Tribute Fund 
Build a lasting online space to share memories and donations. 

Donate in Memory 
Make a one-off or regular gift in honour of someone special. 

Fundraise in Their Name 
Celebrate their life through events or challenges. 

Your Impact 

Every gift made in memory helps Action Duchenne provide vital support, trusted information, community connections, and advocacy for better care and treatments. 

  • £ 5 could help fund a family’s travel costs to attend our conference, making it accessible to all budgets
  • £ 10 could develop a bitesize science video to provide insight and understanding to our community
  • £ 15 could put a Duchenne family member through an 8-week counselling course
  • £ 25 could put a child or young person with Duchenne through a mentoring course to build their confidence and positivity
  • £ 50 could help to fund 6 young people with Duchenne to attend a 10-session program to meet their peers, make friends and learn more about equity and inclusion

Thank You

Your tribute brings hope and strength to families living with Duchenne — and keeps your loved one’s memory alive in a truly meaningful way. 

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From our community

“Making contact with Action Duchenne provided a lifeline”

“Making contact with Action Duchenne provided a lifeline”: Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry was diagnosed with Duchenne muscular dystrophy in 2019 Ben and his wife have 3 children: a daughter in year 3 and a son in his first year of university and Harry, …

The Power of Shared Experience: “Honestly, it would’ve been a much harder road without having joined this group.”   

Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to enable connection with those who truly understand. A Duchenne diagnosis can often set people apart from the support systems they usually rely on. Our support groups mean you can meet people who know exactly …

Guest Blog: Birthday Boy

By Jack Waddington We are pleased to feature a very special guest blog for World Duchenne Awareness Day 2025. This blog has been written by Jack Waddington. Jack’s younger brother Sam lived with Duchenne after he passed away, Jack has written a memoir about growing up with him. In his own words, “it’s about the …

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Action Duchenne
5th Floor, Mariner House
62 Prince Street
Bristol
BS1 4QD

07535 498 506
info@actionduchenne.org 

 

 

 

 

 

 

 

 

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