Halfway Through Action Duchenne’s Webinar Series 2026: Learning, Connecting and Growing Together
“The support our family has received from Action Duchenne over the years has been a lifeline. We feel seen and feel heard.”
As we reach the halfway point of our Webinar Series 2026, we are incredibly proud to share the impact this programme is already having across the Duchenne community. Over the last six months, families, carers, professionals, educators and advocates have come together to explore some of the topics that matter most, from brain health and neurodiversity to physiotherapy, carrier genetics, mental health, palliative care and family wellbeing.
Together, we have delivered 11 webinars and welcomed 139 attendees across a range of topics designed to support and address the needs of the Duchenne community. Our webinar series is not only helping families access trusted information and support, it has also enabled us to connect with 98 new members of the Duchenne community who haven’t engaged with Action Duchenne before.
Real Learning. Real Confidence. Real Impact.
Our goal has never been simply to deliver webinars. We want every session to leave people feeling more informed, empowered and confident in navigating life with Duchenne. That is exactly what you have told us. Participants told us they left our webinars with
- Greater knowledge and understanding
- Increased confidence in advocating for themselves and their families
- Practical tools they could apply immediately
- A stronger sense of connection to the Duchenne community
Powerful feedback shared by the community attests to us achieving the impact we had hoped for in the first half of our series.
“For a small charity, Action Duchenne is responsive and has a massive impact for individuals and families living with Duchenne on a daily basis.”
“The webinars have been invaluable“
“The more informed we are as a family, the better“
The second half of the Webinar Series is packed with powerful conversations and practical support. We will be exploring topics including wheelchair access, navigating diagnosis, transitioning to adult services, understanding Duchenne today to name some of the upcoming topics.
Whether you have attended every session or have not joined yet, there is never a been a better time to get involved.
These webinars are more than presentations. They are a chance to learn from experts connect with other who truly understand, ask the questions that matter and feel part of a community that stands alongside you every step of the way.
If you are part of the Duchenne community, whether as a parent, carer, professional, educator, family member or individual living with Duchenne, there is a place for you here. Do not miss what is coming next: the conversations, connections and support continue throughout the rest of 2026, and we would love you to be a part of them. We’ve also recorded all of our webinars so far and they are available to watch at a time that suits you.
- For more opportunities to meet others, learn more and be part of the amazing Action Duchenne community, join us for our Community Summit 2026 on 13th and 14th November.
- Find out more about our ongoing work, in-person events and how you can get involved in our monthly newsletter.
- We can support you and your family wherever you are in your journey. If you’d like one of our Support Team to contact you, let us know here and we will be in touch. You can also find out more about our monthly support groups and our group counselling programme.
