Community Summit 2026 Agenda

Community Summit 2026 Agenda

Action Duchenne Community Summit Agenda 2026 (1)Download

We are delighted to share the agenda for the Action Duchenne Community Summit 2026. Two powerful days packed with:

Knowledge

Information that helps you navigate today and plan for tomorrow

Community

Connecting people who understand

Care

The support that improves quality of life

1-1 Information and Support

Personalised guidance when you need it most

Hangout Zone (Ages 4-16+)

A Space to Relax, Play and Connect

Creche (Under 5’s)

Supporting Families with Young Children

Wellbeing Zone

Take Time for YOU

Exhibitor Expo

Discover Resources, Services and Support

Family Registration

Professional Registration

Please note:

The Action Duchenne Community Summit 2026 has received financial support from our sponsors. Sponsors have no involvement or influence in the design, content, speaker selection or delivery of the programme.

The agenda is subject to change as we continue speaker engagement and finalise arrangements.

Honouring George and Finding Community

Honouring George and Finding Community Remembering George one year on. “If I’d never experienced George having Duchenne, I wouldn’t be half the person I am now. He taught me so much about life. I truly believe that boys with Duchenne are just the most awesome people in the world.” On Sunday 26th April 2026, Louise Ruddick ran the …

Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …

Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …