Your views matter about bone health. There’s still time to take part in an important survey to improve bone health in Duchenne. The links below will take you to the survey (Closes end April 2018).
Takes about 10 minutes and you can take part if you are over 14 years old and living with Duchenne or if you are a parent or main carer of a child (any age) with Duchenne. The results will be discussed at a ENMC (European Neuro Muscular Centre) workshop in June.
The survey is part of the ScOT-DMD Bone Health
If you have any queries please contact Angela Stringer on 07535 498 506 or angela@actionduchenne.org
Further reading
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Action Duchenne funded ScOT-DMD studyRevised Standard of Care for Duchenne
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ScOT-DMD research study update
Translarna Managed Access Agreement frequently asked questions
