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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Growing up with Duchenne

You are here: Home / Growing up with Duchenne

Watch the session recordings from our Annual Conference 2022. In this section, you can browse the recordings from the session “Growing up with Duchenne”

Parent led on sharing practical advice and tips-housing, adaptations, fundraising and grants

22 December 2022 by Robbie Handley

Practical advice and tips - housing, adaptations, fundraising and grants.Speakers: Clare Bosanquet; Alex Berbank; Simon Dadd; Romla Kadir …

Parent led on sharing practical advice and tips-housing, adaptations, fundraising and grantsRead More

Steroids – the pros; cons and how to make difficult decisions; Michela Guglieri, Jarod Wong

22 December 2022 by Robbie Handley

Overview of Steroids and How can we manage steroid side effects (bone, puberty, weight gain) more proactively?Speakers: Michela Guglieri and Jarod …

Steroids – the pros; cons and how to make difficult decisions; Michela Guglieri, Jarod WongRead More

Siblings – lived experiences Hazel Weaver

22 December 2022 by Robbie Handley

Siblings - lived experiencesSpeaker: Hazel Weaver …

Siblings – lived experiences Hazel WeaverRead More

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