Parent led on sharing practical advice and tips-housing, adaptations, fundraising and grants

22 December 2022 by Robbie Handley

Practical advice and tips – housing, adaptations, fundraising and grants.
Speakers: Clare Bosanquet; Alex Berbank; Simon Dadd; Romla Kadir

Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …

Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it” Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

Parent led on sharing practical advice and tips-housing, adaptations, fundraising and grants

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