Roche UK issues a statement following Sarepta's Press release regarding ELEVIDYS FDA decision Following the press release from Sarepta released on …
Sarepta Therapeutics Announces FDA Approval of ELEVIDYS, the First Gene Therapy to Treat Duchenne Muscular Dystrophy
Sarepta Therapeutics announced U.S. Food and Drug Administration (FDA) accelerated approval of ELEVIDYS (delandistrogene …
Join National Director Florence Boulton as part of our Vitality London 10,000 Team!
Join National Director Florence Boulton as part of our Vitality London 10,000 Team! On September 24th 2023, the hugely popular Vitality London …
Join National Director Florence Boulton as part of our Vitality London 10,000 Team!Read More
D.AD’s Night – Dads Against Duchenne
D.AD's Night - Dads Against Duchenne It is a difficult place being a Dad in Duchenne and there isn’t much opportunity to speak with others face to …
Join our At Home Superheroes!
Join our At Home Superheroes! Ivelina, mum of Presian ( 5 year old DMD hero ), tells us what motivated her family to sign up for the Superheroes …
My viewpoint as a bereaved parent by Angela Stringer
Is it wrong to feel relieved now that I am bereaved? I wish my son was still here and to be able to enjoy his company. Sadly not. …
My viewpoint as a bereaved parent by Angela StringerRead More
Thank you to our volunteers
Thank you to our volunteers 1st - 7th of June is National Volunteers Week and we want to say thank you! In 2022/23 the team here at Action …
Fighting for the future
Fighting for the future While we continue our much needed day to day work supporting our families, I want to share with you the recent developments …
Join us for the second half of Yes I Can Online
Join us for the second half of Yes I Can Online We are now half way through our 12 online sessions. So far we've heard from Alex James and …
Isaac White tells us all about his first fundraising event for Action Duchenne
Isaac White tells us all about his first fundraising event for Action Duchenne "Party Planning is what I was born to do! Enjoy!" On Friday …
Isaac White tells us all about his first fundraising event for Action DuchenneRead More
Ask the pharmaceutical companies your questions ahead of Action Duchenne’s 2023 Annual International Conference
Ask the pharmaceutical companies your questions ahead of Action Duchenne's 2023 Annual International Conference To make sure you get your voice …
Roche UK issues statement to the Duchenne Community following Sarepta’s Update on Regulatory Review of SRP-9001 gene therapy.
Roche UK issues statement to the Duchenne Community following Sarepta's Update on Regulatory Review of SRP-9001 gene therapy. Following the update …
