Take on Challenge 79 for World Duchenne Awareness Day!
World Duchenne Awareness Day 2024
World Duchenne Awareness Day unites the global Duchenne community annually for advocacy, action and change. This year is a monumental milestone as it marks the first year that the United Nations have officially designated 7th September as World Duchenne Awareness Day.
Duchenne Awarness Day is held on the 7th September each year to honour the 79 exons on the dystrophin gene. An error on any one of these exons causes Duchenne muscular dystrophy.
Raise Your Voice for Duchenne
This year’s World Duchenne Awarenss Day theme is “Raise Your Voice for Duchenne”. We are uniting with the global Duchenne community, joining together as one voice to advocate for the rights, inclusion and well-being of people living with Duchenne muscular dystrophy.
And we need YOU to come together alongside us to fight for the voices of everyone living with Duchenne.
Challenge 79
We invite you to take part in our Challenge 79. Do what you want, however you want, with whoever you want to the number of 79. You can do this throughout the month of September. Do it on your own, as a team, as a workplace, as a school, as a family or a group of friends.
Bake 79 cakes, tell 790 jokes, walk 7.9 miles as a family, cycle 79 miles, build something with 790 lego bricks, run 79 miles over the month….the options are endless. What can YOU do?
Take Part as a School
Take on Challenge 79 as a school to raise awareness and funds for Action Duchenne
Read moreMembership 7.9
Become an Action Duchenne Member as part of Challenge 79 – give £7.90 per month!
Read moreWhy get involved?
Duchenne muscular dystrophy is a life-changing diagnosis, with few treatment options and no cure. The children, young people and families need support for their whole journey. They need increased funding for treatments. They need a more inclusive society. They need support for the entire family as they navigate this devastating condition. They need hope for a better future.
Help us be there every day for families who need us. Help us change their future.
We can’t wait to see what you can do to help us increase awareness of Duchenne muscular dystrophy and raise vital funds for our ongoing work. If you are taking part in Challenge 79 we would love to know more. Send us your pictures to fundraising@actionduchenne.org or tag us in your social posts using @ActionDuchenne and #Challenge79
