Following the sad news of the death of Pope Francis on 21st April 2025, we want to express our gratitude for the ongoing support he offered the Duchenne community. In 2024, as he had done in previous years, Pope Francis endorsed World Duchenne Awareness Day with a public statement of support:
“Dear brothers,
On World Duchenne Awareness Day for Duchenne and Becker Muscular Dystrophy, I send a greeting of hope to all the boys and young men affected by this disease. I pray for you and your families, so that you never lose hope and the joy of living.”
Our thoughts are with the global Catholic Church community and all who are affected by this loss.
Coping with Diagnosis with David Schonfeld
