Researchers at Queen’s University Belfast and University of Aberdeen are conducting an online international survey, to gain an understanding of the impact COVID-19 is having on people with a rare disease and their caregivers.
The survey is open to all patients and caregivers aged 18 years or older.
To participate you will need to complete a short survey based on your own experiences, which should take around 20-30 minutes to complete.
Results from this survey will be collated anonymously and feedback to clinicians and Action Duchenne about the current needs expressed by patients and caregivers.
