Action Duchenne Launches Science Live Video Project
Empowering Duchenne families, bringing research into your home
We are thrilled to announce an initiative that aims to bring the world of science directly to you.
Action Duchenne presents the “Science Live Videos” project, a weekly video series designed to empower Duchenne families with science, shedding light on essential topics about Duchenne muscular dystrophy divided into bite-sized pieces.
“Understanding the latest developments in science can bring hope and comfort to our Duchenne families. It has been truly inspiring to witness the major advances of recent years and by supporting further research we are helping push toward the next frontier” Florence Boulton, National Director
Week by week, knowledge unveiled
We understand that navigating the world of science about Duchenne muscular dystrophy can be overwhelming, especially when facing the challenges of the condition itself. That’s why Action Duchenne is committed to delivering a new video series each week, carefully curated into different sections to make learning easy and engaging. They are also simple to share with your friends and family.
Knowledge is power
Our mission is simple—to provide you with the knowledge you need to make informed decisions. By equipping you with the tools to comprehend the science behind Duchenne muscular dystrophy, we aim to empower you with the confidence to navigate this journey.
On World Duchenne Awareness Day 2023, we are proud to release the first video of our Science Live Project!
Action Duchenne would like to thank the following sponsors who have provided financial support for this project but have no involvement in this project: HM Government (in partnership with the National Lottery Community Fund), Pfizer, PTC Therapeutics, Roche, GWF, Sarepta Therapeutics and all the individuals who made their contributions to make this project happen.
