26 April 2024 by Lizzie Cox

8 November 2024 – 9 November 2024

Come together with the Duchenne community at Action Duchenne’s Annual International Conference 2024

Friday 8th – Saturday 9th November 2024

Leonardo Hotel Hinckley Island, Leicestershire, LE10 3JA

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Louise’s London Marathon Story

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it” Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

Annual International Conference

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