Newly diagnosed family online event

Building your foundation of Duchenne knowledge

• Online via Zoom
• Saturday 22nd October 2022
• 14:00 – 17:00 GMT
• All welcome

More information

An online support event for newly diagnosed families. Get more information, support and understanding of Duchenne muscular dystrophy.  

Perfectly timed to be three weeks before the main Action Duchenne Conference, 11 & 12 November in Leicestershire. Get up to speed with ‘the basics’ at this online session. Make connections and new friends. Refresh your memory so that you can absorb as much as possible at the unmissable in-person event.

Who will benefit from attending

• newly diagnosed families (parents, carers, grandparents, friends)
• families starting their learning journey in Duchenne
• families’ teams (school, nursery, physios, OTs, care advisors)

Agenda

• What is Duchenne – an introduction
• Adjusting to the diagnosis
• Building a team around you
• Duchenne research and clinical trials
• How to get the best possible care
• How Action Duchenne can support you
• What to expect at the Action Duchenne International Conference