Working together

Action Duchenne’s board of trustees have directed that the Charity works with both the national and international Duchenne communities since it is only through close co-operation we can seek to find potential treatments and cure, for Duchenne and Becker.  

The list of our partners below is not exhaustive, but illustrates the breadth of Duchenne organisations that we currently work with:

Parent Project Muscular Dystrophy (USA)the Duchenne Alliancethe Jett Foundationthe United Parents Project Muscular Dystrophy, Muscular Dystrophy UKJoining jackthe Duchenne Children’s Trust, Alex’s wish, Duchenne nowthe Duchenne Research Fund, Duchenne Ireland, Duchenne Iceland, , Harrison’s FundParent Project Italy Parent Project Spain, and Parent Project Greece. 


We also work with a range of other organisations, these to help with our campaigning, advocacy, education and research work. 

Duchenne Care:

Treat NMD

The Scottish Muscle Network

The Welsh Muscle Network

The Neurological Alliance

The Specialised Healthcare Alliance

The Care and Support Alliance

Rare Disease UK

Research and Development of potential treatments:

The Genetic Alliance

Empower: Accesss to Medicines

The Saatchi Bill


The Scottish Chief Scientific Office



Council For Disabled Children

Every Disabled Child Matters


Disability Benefits Consortium

Disability Law Service

Contact a Family

Children’s Hospice Association Scotland

Acorns Children’s Hospice

Jack’s Place and Naomi House

Corporate Supporters and Friends

Mathis and Friends sponsor logo neurologicalalliance-logo
O Neills
All Terrain Wheelchairs sponsor page Pfizer Sponsor Page
Prosensa logo sponsor PTC Logo sponsor page
Santhera logo sponsor page Sarepta_Logo_Sponsor_Page
SUMMITplc_Logo sponsor page ABHB Logo 2 website edit

Get involved