We understand the importance of nurturing siblings of young people with complex needs.

Takin' Charge

Takin’ Charge was Action Duchenne’s Lottery-funded Transition to Adulthood Project for young people with Duchenne aged 14 – 19  years. 

The Takin’ Charge programme provided aspirational information for teenagers and their families about the choices available beyond school, including  further education, training and/or employment options, independent living including housing options, the impact of good health care provision including the importance of advice on  sexuality, health and relationships. 

The project also gave young people with Duchenne the chance to develop friendships and learn new skills such as animation, music and computing, and to gain the confidence to speak up for themselves when talking to their Members of Parliament or organising fundraising events. 

We also worked with parents and siblings on parallel support and information sessions 'Letting go' and 'What about us'.

Young people at the Conference

2017 was the first year we ran a weekend full of sessions specifically for teenagers and their families in the Teenage Zone. It was a huge success, with groups having a go at 3D printing, drama sessions, wheelchair sports and even a silent disco! Look out for this year's sessions!

Further reading

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