Support Calendar – What’s On

Events in January 2026

Events in January 2026

Footer

Subscribe to our mailing list

“Making contact with Action Duchenne provided a lifeline”

The Power of Shared Experience: “Honestly, it would’ve been a much harder road without having joined this group.”

Guest Blog: Birthday Boy

10:00 am: Grandparents Together

“Making contact with Action Duchenne provided a lifeline”: Find out why Ben Dolling decided to run the London Marathon dressed as a parrot! Harry was diagnosed with Duchenne muscular dystrophy in 2019 Ben and his wife have 3 children: a daughter in year 3 and a son in his first year of university and Harry, …

Action Duchenne have monthly online meet-ups for Duchenne dads, mums and grandparents, facilitated by our Family Support Officers and designed to enable connection with those who truly understand. A Duchenne diagnosis can often set people apart from the support systems they usually rely on. Our support groups mean you can meet people who know exactly …

By Jack Waddington We are pleased to feature a very special guest blog for World Duchenne Awareness Day 2025. This blog has been written by Jack Waddington. Jack’s younger brother Sam lived with Duchenne after he passed away, Jack has written a memoir about growing up with him. In his own words, “it’s about the …

9 10:00 am: Grandparents Together 10:00 am: Grandparents Together 10:00 am – 11:00 am January 9, 2026 Register Find out more