Our Support team can carefully match you with other Mums, Dads and Grandparents of children, young people and adults living with Duchenne.
Read about others experiences of peer to peer support
Peer to peer support – Chloe and Lyndsey
Peer-to-peer support – feeling positive for the future
Peer-to-peer support – I don’t feel so alone anymore
Peer-to-peer support – meeting a fellow mom
Please do get in touch with us if you are ready to connect with others info@actionduchenne.org
Our Facebook Groups
Our Facebook Groups are closed and provide a safe space for you to reach out to others. All groups are monitored by our Support team.
Whats App Groups
Our Support Officers can set up small Whats App groups for parents who have similar aged children living with Duchenne. We can also set them up for grandparents, adult siblings and spouses.
If you would like to join a Whats App group please contact info@actionduchenne.org
Family Stories
Dougie’s story
Turning Point – a Mum’s Perspective
14 year old sibling features in FirstNews
Vivek Gohil, campaigner, gamer and consultant
Wingwalk
Vivek Gohil – young person living with Duchenne
Lizzie Deeble – Family Ambassador
Manjula Gohil – parent story
Adam – Taekwondo Champ!
Linda Smith – Grandparent story
Mitch Coles – “Living my life the way I want to live it”
Angela Stringer – being a carrier of Duchenne
