Swallowing in Duchenne: An update on Standards of Care

2 February 2024 by Lizzie Cox

An update on swallowing and gastrointestinal standards of care: from the lips to the stomach.

Honouring George and Finding Community

Honouring George and Finding Community Remembering George one year on. “If I’d never experienced George having Duchenne, I wouldn’t be half the person I am now. He taught me so much about life. I truly believe that boys with Duchenne are just the most awesome people in the world.” On Sunday 26th April 2026, Louise Ruddick ran the …

Turning Challenges into Change – Our Story with Action Duchenne

I was introduced to Action Duchenne by the Muscle Team in Newcastle shortly after Oliver’s diagnosis in 2017. In those early, overwhelming days, their support meant everything. Members of the Support Team would call just to let me talk, vent, cry — whatever I needed. They were simply there, and that’s why I choose to support them every …

Louise’s London Marathon Story

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Swallowing in Duchenne: An update on Standards of Care

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