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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Conference

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Inclusion and Equity

11 November 2025 by Lizzie Cox

Inclusion and Equity This stream will run on Saturday 15th November and will explore practical approaches to accessibility and equal opportunities …

Inclusion and EquityRead More

Adapting to Change

11 November 2025 by Lizzie Cox

Adapting to Change This stream will run on Saturday 15th November and is designed to equip you with tool, resources and information to thrive in an …

Adapting to ChangeRead More

The Action Duchenne Conference was a game-changer for me as a new Duchenne dad.

21 August 2024 by Lizzie Cox

The Action Duchenne Conference was a game-changer for me as a new Duchenne dad. It gave me the knowledge I needed through clear talks on treatment and …

The Action Duchenne Conference was a game-changer for me as a new Duchenne dad.Read More

Submit Your Questions to be Answered by Pharmaceutical Companies

9 July 2024 by John Marrin

…

Submit Your Questions to be Answered by Pharmaceutical CompaniesRead More

Physiotherapy in Non-Ambulant Duchenne Muscular Dystrophy

2 February 2024 by Lizzie Cox

Question and Answer session about physiotheraphy and treatment in non-ambulant DMD …

Physiotherapy in Non-Ambulant Duchenne Muscular DystrophyRead More

Question and Answer session with Pharmaceutical Companies

2 February 2024 by Lizzie Cox

Action Duchenne invited pharmaceutical companies to participate in this question and answer session. …

Question and Answer session with Pharmaceutical CompaniesRead More

Physiotherapy in Ambulant Duchenne Muscular Dystrophy

2 February 2024 by Lizzie Cox

An overview of how physiotherapy techniques are used to measure, monitor and help treat ambulant DMD patients. …

Physiotherapy in Ambulant Duchenne Muscular DystrophyRead More

Bone Health and Puberty Delay in DMD and Emergency Care

2 February 2024 by Lizzie Cox

An overview of the assessment and management of puberty delay, factors contributing to bone health and management, and the emergency management of DMD …

Bone Health and Puberty Delay in DMD and Emergency CareRead More

Swallowing in Duchenne: An update on Standards of Care

2 February 2024 by Lizzie Cox

An update on swallowing and gastrointestinal standards of care: from the lips to the stomach. …

Swallowing in Duchenne: An update on Standards of CareRead More

Overview of Cardiac Care

2 February 2024 by Lizzie Cox

An overview of Duchenne muscular dystrophy and associated cardiac conditions and the associated diagnostic methods and care. …

Overview of Cardiac CareRead More

Overview of Respiratory Care

2 February 2024 by Lizzie Cox

An overview of duchenne muscular dystrophy and associated respiratory conditions and the associated diagnostic methods and care. …

Overview of Respiratory CareRead More

Latest Clinical Trial Updates

2 February 2024 by Lizzie Cox

An update on the progress and findings of the latest therapeutic clinical trials …

Latest Clinical Trial UpdatesRead More

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