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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • In-Person Support Events
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
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#ADCONF20 announcement

June 3, 2020 by Lynnette

We want to announce that the Action Duchenne International Conference will take place online this year. Following the Government's latest update, …

#ADCONF20 announcementRead More

A message from our Patron, Harry Hill

November 18, 2019 by Lynnette

Harry Hill, one of our amazing Patrons, sent us a video which we proudly played at the Gala Dinner on Friday at the Action Duchenne International …

A message from our Patron, Harry HillRead More

An unforgettable weekend at #ADCON19

November 18, 2019 by Lynnette

Thank you to each and every person who attended the Action Duchenne International Conference 2019. We have all had such a wonderful weekend with …

An unforgettable weekend at #ADCON19Read More

Duchenne Standards of Care: Psychosocial

September 9, 2019 by Lynnette

At the Action Duchenne International Conference in 2018, experts from across the world gave talks on topics around the current Standards of Care for …

Duchenne Standards of Care: PsychosocialRead More

Duchenne Standards of Care: Transition

September 9, 2019 by Lynnette

At the Action Duchenne International Conference in 2018, experts from across the world gave talks on topics around the current Standards of Care for …

Duchenne Standards of Care: TransitionRead More

3 months until the Action Duchenne International Conference 2019

August 8, 2019 by Lynnette

We are super excited here at AD HQ that there are only 3 short months to go before #ADConf19! We will begin to announce our speakers tomorrow who will …

3 months until the Action Duchenne International Conference 2019Read More

Lots to take away from the PPMD Conference

July 5, 2018 by abzali123

Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, …

Lots to take away from the PPMD ConferenceRead More

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