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  • Challenge 79 for World Duchenne Awareness Day
  • About Us
    • Our vision
    • Our Strategy
    • What we do
    • Our Impact
    • Our team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Mental Health Awareness Week 2025
    • Science on Tour
    • Support Calendar – What’s On
    • Support for you and your family
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
    • Schools
    • Siblings
    • End of Life and Bereavement
  • AD Annual International Conference
    • SAVE THE DATE for the Action Duchenne Annual International Conference 2025
    • Highlights from the Annual Action Duchenne Annual International 2024
    • Annual International Conference 2023 Video Recordings
    • Annual International Conference 2022 Recordings
      • Adults with Duchenne
      • Growing up with Duchenne
      • The Duchenne Journey
      • What is new in Duchenne research?
  • News, Webinars and Blogs
    • News
    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
  • Support Us
    • Help Make a Life Beyond Duchenne Possible – Every Month
    • Fundraising Events and Challenges
    • Take on a challenge for Duchenne
    • Shop

Duchenne muscular dystrophy

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Securing the right support for your child in school

March 8, 2022 by Victoria Young

by Rebecca Smith SENCO/INCO Rebecca Smith oversees provision at St. Mary's Primary Academy in Cambridgeshire to ensure that all children within the …

Securing the right support for your child in schoolRead More

September Fundraising Round Up

October 1, 2021 by Victoria Young

September has been an absolutely amazing month for  #TeamAD! Mudder in memory of Thomas The start of September was a muddy one! Adam and …

September Fundraising Round UpRead More

Giving back in honour of Thomas

June 25, 2021 by Victoria Young

When Thomas was around 7 years old, Adam remembers him having his appendix out. Adam arranged for a card to be signed by the whole school to wish him …

Giving back in honour of ThomasRead More

Dad completes amazing endurance event challenge for Action Duchenne

June 7, 2021 by Victoria Young

Dan Brown has been running endurance events since January last year to raise money for Action Duchenne. On 5th June he completed his last endurance …

Dad completes amazing endurance event challenge for Action DuchenneRead More

Edinburgh Marathon ‘Our run for Ben’

May 25, 2021 by Victoria Young

I took up running, as a kind of therapy, shortly after Ben died.  I was kind of cajoled on by colleagues who had run the London Marathon in …

Edinburgh Marathon ‘Our run for Ben’Read More

Duchenne Nana walks 100 miles

May 21, 2021 by Victoria Young

A big congratulations to Linda Smith for completing her 100 mile walking challenge this week! She set herself the challenge to raise money for Action …

Duchenne Nana walks 100 milesRead More

An amazing 10 in 10 for Action Duchenne

May 19, 2021 by Victoria Young

For the last 10 days Samantha Lews has run 10km every day! Her reason for running is her friends son Lewis, who is 13 and lives with Duchenne …

An amazing 10 in 10 for Action DuchenneRead More

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