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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Duchenne muscular dystrophy

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Securing the right support for your child in school

8 March 2022 by Victoria Edwards

by Rebecca Smith SENCO/INCO Rebecca Smith oversees provision at St. Mary's Primary Academy in Cambridgeshire to ensure that all children within the …

Securing the right support for your child in schoolRead More

September Fundraising Round Up

1 October 2021 by Victoria Edwards

September has been an absolutely amazing month for  #TeamAD! Mudder in memory of Thomas The start of September was a muddy one! Adam and …

September Fundraising Round UpRead More

Giving back in honour of Thomas

25 June 2021 by Victoria Edwards

When Thomas was around 7 years old, Adam remembers him having his appendix out. Adam arranged for a card to be signed by the whole school to wish him …

Giving back in honour of ThomasRead More

Dad completes amazing endurance event challenge for Action Duchenne

7 June 2021 by Victoria Edwards

Dan Brown has been running endurance events since January last year to raise money for Action Duchenne. On 5th June he completed his last endurance …

Dad completes amazing endurance event challenge for Action DuchenneRead More

Edinburgh Marathon ‘Our run for Ben’

25 May 2021 by Victoria Edwards

I took up running, as a kind of therapy, shortly after Ben died.  I was kind of cajoled on by colleagues who had run the London Marathon in …

Edinburgh Marathon ‘Our run for Ben’Read More

Duchenne Nana walks 100 miles

21 May 2021 by Victoria Edwards

A big congratulations to Linda Smith for completing her 100 mile walking challenge this week! She set herself the challenge to raise money for Action …

Duchenne Nana walks 100 milesRead More

An amazing 10 in 10 for Action Duchenne

19 May 2021 by Victoria Edwards

For the last 10 days Samantha Lews has run 10km every day! Her reason for running is her friends son Lewis, who is 13 and lives with Duchenne …

An amazing 10 in 10 for Action DuchenneRead More

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