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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

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Fundraising Story – The Glasgow Kiltwalk for Action Duchenne

27 June 2024 by Lizzie Cox

The Glasgow Kiltwalk for Action Duchenne Written by Sarah Kelly Last month my partner Paul and I took part in the Glasgow Kiltwalk to raise …

Fundraising Story – The Glasgow Kiltwalk for Action DuchenneRead More

Finding Purpose and Hope – A Sibling’s Story

24 January 2024 by Lizzie Cox

Written by Pilar Maestre I am Pilar, currently 22 years old, and I have lived most of my life in Spain, where I was born. Recently, I volunteered …

Finding Purpose and Hope – A Sibling’s StoryRead More

A day with the Sporting Bears

30 November 2021 by Lynnette

Article by Jess Breeze | Duchenne Mum | Volunteer I have worked with my colleague Kim for nearly 5 years, I’ve known she was ‘into her cars’ and I …

A day with the Sporting BearsRead More

Making a difference

21 July 2021 by Lizzie Cox

It’s not all marathons and mountain climbing, the little things make a big impact too! Thanks to Jess Breeze (Action Duchenne volunteer and Mum …

Making a differenceRead More

Treasuring each day

1 April 2021 by Lizzie Cox

By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones. At 3 years …

Treasuring each dayRead More

How on earth have we done a year in lockdown?

31 March 2021 by Lizzie Cox

By Ashley Lawmon. 12 whole months ago we took our family and locked them away from the world thinking 'ahh few months and we will be free again…' …

How on earth have we done a year in lockdown?Read More

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