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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

recently diagnosed families

You are here: Home / recently diagnosed families

Your invitation to the newly diagnosed Duchenne family event

10 September 2021 by Lynnette

Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …

Your invitation to the newly diagnosed Duchenne family eventRead More

Diagnosis, support and fundraising

16 April 2021 by Lizzie Cox

By Lyndsey Kaye Riley was just 3 years old when he was diagnosed with Duchenne.  There was no history of it in my family, so it came as such a …

Diagnosis, support and fundraisingRead More

Treasuring each day

1 April 2021 by Lizzie Cox

By Scott Turnbull. When Oakley was diagnosed with DMD we were looking at possible autism or ADHD as he was not meeting milestones. At 3 years …

Treasuring each dayRead More

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