Understanding Duchenne Muscular Dystrophy requires looking at the entire family unit. This webinar, held on April 21st, focuses specifically on the sibling perspective – a viewpoint that is essential yet often overlooked.
Featuring a panel of siblings at various life stages, this session explores the emotional and social landscape of growing up with a sibling with Duchenne. Key discussions revolve around self-expression, navigating the future and finding a sense of self within the family journey.
Key Takeaways:
- Identity & Self-Expression: Navigating life as a sibling while maintaining your own identity.
- Personal Aspirations: Balancing family needs with personal dreams and future goals.
- Connection and Validation: Shared insights into the challenges and the unique strengths gained through their experiences.
Find out more about the upcoming webinars in our 2026 series and more about our ongoing work, in-person events and how you can get involved in our monthly newsletter.
We can support you and your family wherever you are in your journey. If you’d like one of our Support Team to contact you, let us know here and we will be in touch. You can also find out more about our monthly support groups and our group counselling programme.
