Webinar Series 2026
A Duchenne diagnosis means navigating complexity everyday: medical, emotional, educational, practical and social. Too often, families are expected to find answers alone, to navigate systems without guidance and to carry emotional weight in silence.
The Action Duchenne Webinar Series 2026 exists to change that. This programme will bring together expert insights, lived experience and compassionate facilitation to address the issues that matter most to the Duchenne community. We have intentionally timed each webinar to align with national awareness moments to turn awareness into meaningful support and action. It is a space for clarity, validation and connection.
Across 2026, we will explore the full reality of Duchenne, from diagnosis and education to mental health, caring, identity, grief and future planning. Every session is designed to offer:
- Clear reliable information you can trust
- Practical take-home guidance you can apply immediately
- Emotionally safe conversations that acknowledge lived experience
- Inclusive spaces where every opinion is respected
Our approach is simple. No false hope. No minimising reality. No one-size-fits-all answers.
Duchenne has changed, but understanding has not always kept pace. Families are living longer with complexity, navigating evolving care, education systems and emotional realities that are rarely addressed together. This series responds to that gap, offering conversations that will equip you to live your life fully and thrive. We recognise that awareness without action and support without understanding are not enough. This series brings both.
The Action Duchenne Webinar Series 2026 is designed for:
- Parents and carers at every stage of the journey
- Siblings and friends
- Bereaved parents and families
- Educators, heath care professionals and support workers
- Anyone committed to understand Duchenne with honesty and respect.
You do not need to have all the answers. You do not need to be ‘coping well’. You just need to come as you are. Together, we can build understanding that is accurate, compassionate and rooted in real life, for the Duchenne community, by the Duchenne community.
All webinars are free to attend and open to all Duchenne communities. We look forward to welcoming you.
Real Conversations. Trusted Knowledge. Community at the centre.
Once registered you will receive confirmation and joining details, reminder emails before each session and a follow up email after the webinar. If you have any questions about the series or need support with registration, please contact : info@actionduchenne.org
Read our reflections as we reach the half-way point of our Webinar 2026 series.
Register for the next Webinars in our 2026 series
Navigating Diagnosis and Grieving the Life Imagined: Part 2: Coping with a Duchenne Diagnosis and Understanding the Emotional Landscape
Date: Wednesday 26th August
Time: 6:00-7:00pm
Part 2 of this two-part series focuses on the emotional experience of receiving a Duchenne diagnosis. We’ll explore early emotional responses, the concept of ambiguous loss, and the ongoing nature of grief that many families experience. The session offers practical coping strategies, communication approaches, and guidance on building a support network — at a pace that works for you.
Missed it? No problem! All of our webinars so far have been recorded and are available to watch here.
Webinar Series Update:
We would like to thank you the community for joining Action Duchenne Webinar Series 2 We remain committed to bringing engaging and informative webinars and are currently working with our speakers to finalise dates for the 2027 session. Further details and dates will be announced in due course.
026 and for the great feedback.
We would like to share that the second half of the webinar series will be delivered in 2027. The revised timeline reflects the scheduling of the overall programme and allows us to continue showcasing the breadth of expertise and perspectives that our speakers bring.
Find out more about our ongoing work, in-person events and how you can get involved in our monthly newsletter.
We can support you and your family wherever you are in your journey. If you’d like one of our Support Team to contact you, let us know here and we will be in touch. You can also find out more about our monthly support groups and our group counselling programme.
