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DMD Registry

The DMD Registry is a database that we have launched to help fast track clinical trials and offer families the very latest information on new treatments for Duchenne and Becker Muscular Dystrophy.

 

Charity Information

Duchenne Muscular Dystrophy (DMD) is a heartbreaking disease. Children begin to see their muscles waste away and families struggle to cope with the diagnosis and day to day management of this condition. Young men die early in late teens or are left wheelchair bound and unable to move unaided. The hope for families lies in new treatments that can slow or stop DMD in its tracks.

Action Duchenne is the only national Charity that exclusively funds research for a cure and promotes campaigns for better medical care for Duchenne and Becker Muscular Dystrophy.


About Action Duchenne

Parent Project UK is a Charity set up and run by parents and supporters of boys with DMD.  Parent Project UK was established as a Charity in July 2001.

Action Duchenne Ltd was established as a limited company by guarantee not having share capital in 2003.

The objects of the Charity are "The relief of persons with Duchenne and Becker Muscular Dystrophy through such means as are Charitable by law"

Downloads

To view accounts, annual reports, details of the current directors and other legal documents, please visit the document library.