Support Calendar – What’s On

Events in May 2026

Events in May 2026

Events in May 2026

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Louise’s London Marathon Story

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Blue Monday Blog: Hear from Victoria, our Fundraising Officer and Duchenne Mum

10:30 am: Parent/Carers In-Person Meet-Up: London

10:00 am: Grandparents Together

8:00 pm: Dads Against Duchenne

8:00 pm: Time Out - for Mums

6:00 pm: Webinar Series 2026: Duchenne and the Brain

10:30 am: Parent/Carers In-Person Meet-Up: Leeds

Residential Weekend for Young People Living with Duchenne

Residential Weekend for Young People Living with Duchenne

Residential Weekend for Young People Living with Duchenne

Residential Weekend for Young People Living with Duchenne

10:30 am: Parent/Carers In-Person Meet-Up: London

10:00 am: Grandparents Together

8:00 pm: Dads Against Duchenne

8:00 pm: Time Out - for Mums

6:00 pm: Webinar Series 2026: Duchenne and the Brain

10:30 am: Parent/Carers In-Person Meet-Up: Leeds

Residential Weekend for Young People Living with Duchenne

Residential Weekend for Young People Living with Duchenne

Residential Weekend for Young People Living with Duchenne

Residential Weekend for Young People Living with Duchenne

Louise’s London Marathon Story Written by Louise Ruddick “My relationship with Action Duchenne came about very spontaneously at the beginning of January this year. My brother, George, was diagnosed with Duchenne back in 1992, just before his third birthday. He was obviously too young to be aware however the impact that it had on our …

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it” Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

Written by Victoria Edwards, Action Duchenne’s Fundraising Officer and mum to Dougie (who lives with Duchenne) and Allie. Feeling Blue “This Monday was Blue Monday, and wow… I really felt it. It was grey, drizzly, my son was up half the night and ended up off school from sheer tiredness. My daughter went in to …

1 10:00 am: Grandparents Together 10:00 am: Grandparents Together 10:00 am – 11:00 am May 1, 2026 Register Find out more

6 8:00 pm: Dads Against Duchenne 8:00 pm: Dads Against Duchenne 8:00 pm – 9:00 pm May 6, 2026 Register Find out more

7 8:00 pm: Time Out - for Mums 8:00 pm: Time Out - for Mums 8:00 pm – 9:00 pm May 7, 2026 Register Find out more

13 6:00 pm: Webinar Series 2026: Duchenne and the Brain 6:00 pm: Webinar Series 2026: Duchenne and the Brain 6:00 pm – 7:00 pm May 13, 2026 Register Find out more

15 10:30 am: Parent/Carers In-Person Meet-Up: Leeds 10:30 am: Parent/Carers In-Person Meet-Up: Leeds 10:30 am – 2:00 pm May 15, 2026 Holiday Inn Express Kirkstall Road Leeds, LS3 1LY View Location Map Register Find out more

22 Residential Weekend for Young People Living with Duchenne Residential Weekend for Young People Living with Duchenne May 22, 2026 – May 25, 2026 Register Find out more

23 Residential Weekend for Young People Living with Duchenne Residential Weekend for Young People Living with Duchenne May 22, 2026 – May 25, 2026 Register Find out more

24 Residential Weekend for Young People Living with Duchenne Residential Weekend for Young People Living with Duchenne May 22, 2026 – May 25, 2026 Register Find out more

25 Residential Weekend for Young People Living with Duchenne Residential Weekend for Young People Living with Duchenne May 22, 2026 – May 25, 2026 Register Find out more