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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
  • Annual Conference
    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Meeting up in-person

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Meeting up in-person

Turning Point Families Day, 22nd June

Read Victoria’s blog about our Turning Point Families Day at Thomley.

Read about our Turning Point Meet up

Parallel Windsor 2024

Action Duchenne are proud to be a Parallel charity partner for their flagship Festival of Inclusivity, held on 7th July 2024 in the grounds of Windsor Great Park and staged on the iconic Long Walk. We want to use this amazing opportunity to bring our community together and to get Team AD out in force! 

We want to take this opportunity to bring our Turning Point group together in person, with families and carers. Join staff, trustees, young people living with Duchenne and their families to take part in a truly inclusive, accessible and family friendly event. Places are FREE and we will have a dedicated area for meeting up before and after the events and we would love to see as many of you as possible. Let’s make it our biggest AD team event yet!

Sign Up Here

The HangOut – Conference 2024

The Action Duchenne International Conference is also home to The HangOut – an opportunity for young people living with Duchenne and their siblings to be together, make friends and take part in some brilliant activities. In 2023 we had gaming with MindJam for the whole 2 days, a Sublime Science sessions, a brilliant art group and RokzSkool. We want to make it bigger and better this year, so watch this space and get ready to join us on 8th and 9th November, Leonardo Hotel in Hinckley.

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Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey.

Parent Story: Scott and Vicki share their story of their son’s diagnosis of Duchenne and their family’s journey. “I was just sitting in the room and the doctor’s mouth was moving but I couldn’t hear anything that was coming out of it”  Parents Scott and Vicki have two children, Josh and Layla. When Josh was just …

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BS1 4QD

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