Duchenne 101 Online
Our Duchenne 101 virtual event will be held on Saturday the 28th of September from 2 – 5pm and we would love for you to join us.
This year we have 6 sessions covering the medical, psychological and social aspects of living with Duchenne and what we can do to get the best outcome for everyone living with Duchenne.
Sessions are:
- Dystrophin in the Body
- Treatments (Current and future)
- A Q + A sessions with Ravi, a 36 year old living and achieving with Duchenne
- Coming to terms with Duchenne
- Protecting the wellbeing of you and your child
- Accessing the world around you
We believe that these subjects are always relevant when it comes to Duchenne, not only when you are newly diagnosed. It is often when we feel most at home with Duchenne that it decides to throw another problem our way. We want to arm you with the knowledge and the information of what to do, where to go and who to speak to make sure you and your family get the support or help you deserve.
There will be breaks built into the afternoon as well as opportunities to discuss and ask AD staff and the community your questions. Often Duchenne can make us feel so isolated from each other, days like this can really remind us that there is a strong community of families experiencing Duchenne and we are stronger together.
It is a virtual event and we have done this to make it easier for those in remote and International communities to join as well as those of us that struggle to commute or access in person events.
The day will be run and hosted by Alex from the team and if you have any questions at all about the day or want any further information please contact him at alex@actionduchenne.org or call/ text him on 07939973981. We look forward to seeing as many of you there as possible.
Have you booked tickets for our in-person conference yet?
Join the Duchenne community at Action Duchenne’s Annual International Conference 2024
Friday 8th – Saturday 9th November 2024
Leonardo Hotel Hinckley Island, Leicestershire, LE10 3JA
Our 22nd Annual International Conference will bring together families, clinicians, therapists, researchers, and pharmaceutical companies from across the world to support, empower and share knowledge.
The theme for this year’s conference is ‘Educating, Connecting and Wellbeing’ with 3 simultaneous content streams over 2 days, covering key areas on Duchenne muscular dystrophy, enabling you and your family to discover the latest Duchenne science from the experts, build your support network and make time to focus on your mental and physical wellbeing. Come along with your family – Action Duchenne is delighted to offer our Hang Out area for teens, and we welcome the return of our free creche for under 9’s to allow parents/carers to attend conference sessions. Join us on Friday evening for a 3-course meal and dance celebration to make it an unforgettable weekend.
Thanks to the generous support from our Sponsors, tickets are FREE for Duchenne families and anyone living with Duchenne. We are also offering families a grant of up to £100 towards their conference travel and/or accommodation.
