ACTION Duchenne’s longest-serving Trustee, Mark Silverman, has today launched his lock-down inspired album ‘Markin’ Time’. Taking vocals for …
A day with the Sporting Bears
Article by Jess Breeze | Duchenne Mum | Volunteer I have worked with my colleague Kim for nearly 5 years, I’ve known she was ‘into her cars’ and I …
Introducing our London Marathon Heroes
Article by Victoria Young, Engagement and Support Officer This Sunday 3rd October we have four runners taking on the London Marathon and five …
September Fundraising Round Up
September has been an absolutely amazing month for #TeamAD! Mudder in memory of Thomas The start of September was a muddy one! Adam and …
Community celebrates GP’s epic 362 miles in 6 days
This weekend marked the culmination of months of planning and preparation by the dedicated community around Niall, Deborah and Kevin O’Doherty from …
Drew’s Way First Steps walk
A big thank you and congratulations to new Duchenne parents Molly Pitts and Zak Denny who organised the hugely successful 'First Steps 7 mile walk' …
‘Tyre-man’ Duchenne Dad faces the impossible
By Alexis Ellison | Duchenne Dad | serial fundraiser It is done! 24hrs and over 40miles pulling and carrying a 10kg tyre and chain.I'm really …
Duchenne Dad to pull tyre for 24 hours
A resounding good luck and thank you to serial fundraiser and Duchenne Dad, Lex Ellison who is taking part in the Endure 24 running challenge in Leeds …
Giving back in honour of Thomas
When Thomas was around 7 years old, Adam remembers him having his appendix out. Adam arranged for a card to be signed by the whole school to wish him …
Dad completes amazing endurance event challenge for Action Duchenne
Dan Brown has been running endurance events since January last year to raise money for Action Duchenne. On 5th June he completed his last endurance …
Dad completes amazing endurance event challenge for Action DuchenneRead More
Edinburgh Marathon ‘Running for a cure’
On Sunday 30th May Ian is running the Edinburgh Marathon for Action Duchenne. Ian has been inspired to run 26.2 miles after seeing the challenges …
Edinburgh Marathon ‘Our run for Ben’
I took up running, as a kind of therapy, shortly after Ben died. I was kind of cajoled on by colleagues who had run the London Marathon in …
