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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
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    • Work For Us
    • Volunteer
    • The DMD Registry
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  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
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    • Recently diagnosed
    • Connect with Others
    • Support for 8-14 yrs ‘Turning Point’
    • Support for 14-25 yrs ‘Yes I Can’
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    • Action Duchenne Annual International Conference 2025
  • News, Webinars and Blogs
    • News
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      • Webinar Series 2025
      • Webinar recordings
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      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Blogs
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Blogs

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Lots to take away from the PPMD Conference

July 5, 2018 by abzali123

Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, …

Lots to take away from the PPMD ConferenceRead More

Spotlight on Fundraisers July 2018

July 5, 2018 by abzali123

Here are some of our wonderful fundraisers for this month! …

Spotlight on Fundraisers July 2018Read More

Spotlight on Fundraisers June 2018

May 25, 2018 by abzali123

Here are some of our wonderful fundraisers for this month! Two new skydivers' pages https://www.justgiving.com/fundraising/tracy-tuck1 …

Spotlight on Fundraisers June 2018Read More

The Forgotten Voice – living with Duchenne as a sibling

April 25, 2018 by abzali123

Hazel has written this piece for Action Duchenne to help fellow siblings of young people living with Duchenne to know they are not alone. My name is …

The Forgotten Voice – living with Duchenne as a siblingRead More

Interview with Abbie and Mark Silverman

April 10, 2018 by abzali123

Watch the dedicated Abbie and Mark Silverman speak with Peter Duffy at their 10th Conference. YouTube Video …

Interview with Abbie and Mark SilvermanRead More

Interview with Jon Powton

April 10, 2018 by abzali123

Hear from the fantastic Jon Powton when he spoke with Peter Duffy at the #ADConf17 about his life, fostering and living with Becker muscular …

Interview with Jon PowtonRead More

Spotlight on fundraisers January 2018

January 25, 2018 by abzali123

Jo Gelblum is a serial fundraiser Grandparent who raised £1,984 selling cakes over Christmas.  Members of the Marks Tey Silver Threads …

Spotlight on fundraisers January 2018Read More

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