Hear From Our Community

Things like this don’t happen to you… do they? – a Duchenne Dad’s perspective

5 March 2019 by abzali123

Check out a new blog from a Duchenne Dad's perspective by the brilliant Kieron Sales. https://duchdad.home.blog It’s a …

Things like this don’t happen to you… do they? – a Duchenne Dad’s perspectiveRead More

Dave’s story

27 February 2019 by abzali123

Fundraiser profile Dave Hampton Age 52 Devoted Husband & Father …

Dave’s storyRead More

Redefining ‘normal’ – disability from a sibling’s perspective

23 August 2018 by abzali123

Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy. For those of you that …

Redefining ‘normal’ – disability from a sibling’s perspectiveRead More

Hear from our Skydivers!

12 July 2018 by abzali123

12 amazing fundraisers jumped out of planes across the country on Saturday 7 July 2018. They raised a fantastic £9,000 to help us achieve our …

Hear from our Skydivers!Read More

Lots to take away from the PPMD Conference

5 July 2018 by abzali123

Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, …

Lots to take away from the PPMD ConferenceRead More

Spotlight on Fundraisers July 2018

5 July 2018 by abzali123

Here are some of our wonderful fundraisers for this month! …

Spotlight on Fundraisers July 2018Read More

Spotlight on Fundraisers June 2018

25 May 2018 by abzali123

Here are some of our wonderful fundraisers for this month! Two new skydivers' pages https://www.justgiving.com/fundraising/tracy-tuck1 …

Spotlight on Fundraisers June 2018Read More

The Forgotten Voice – living with Duchenne as a sibling

25 April 2018 by abzali123

Hazel has written this piece for Action Duchenne to help fellow siblings of young people living with Duchenne to know they are not alone. My name is …

The Forgotten Voice – living with Duchenne as a siblingRead More

Interview with Abbie and Mark Silverman

10 April 2018 by abzali123

Watch the dedicated Abbie and Mark Silverman speak with Peter Duffy at their 10th Conference. YouTube Video …

Interview with Abbie and Mark SilvermanRead More

Interview with Jon Powton

10 April 2018 by abzali123

Hear from the fantastic Jon Powton when he spoke with Peter Duffy at the #ADConf17 about his life, fostering and living with Becker muscular …

Interview with Jon PowtonRead More

Spotlight on fundraisers January 2018

25 January 2018 by abzali123

Jo Gelblum is a serial fundraiser Grandparent who raised £1,984 selling cakes over Christmas. Members of the Marks Tey Silver Threads …

Spotlight on fundraisers January 2018Read More

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