Hear From Our Community

Shining a spotlight on Sam Heathcote – a very special young fundraiser

7 July 2020 by Samantha

Sam's kind hearted, generous and thoughtful nature shines through everything he does to support us and our work. Inspired by his good friend Toby …

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Remembering BJ Doherty

7 July 2020 by Samantha

We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, …

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Supporting you as the world re-opens

29 June 2020 by Lynnette

A message from the National Director, Florence Boulton Lock-down has been a time of grief for many, losing loved ones at a time when we are unable …

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It’s easy to start fundraising with JustGiving

26 June 2020 by Lynnette

Guide to setting up your page It's quick and easy to set up a Fundraising Page for Action Duchenne. Just follow the steps below: 1. …

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A Life Fulfilled In Everyway (ALFIE)

12 June 2020 by Lynnette

By Duchenne Dad, Kieron Sales Hello again! First of all I’d just also like to say a big thank you to everyone that has taken time to read my …

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80s quiz night raises over £720!

10 June 2020 by Lynnette

Sam and Lynnette joined 30 other 80s fans on Lizzie Deeble's 80s quiz night on Friday. It was a great night, with lots of laughs and brilliant …

80s quiz night raises over £720!Read More

Uncle Matt’s 100km challenge

9 June 2020 by Samantha

Matt's story; I will be running 100km (62.13 miles) to raise money for Duchenne research. The research carried out will hopefully slow the …

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Shining a spotlight on Nick Heathcote

29 May 2020 by Samantha

We are delighted to share Nick's story, where he talks about his 100 mile challenge and the incredible young man who inspires him. My story My …

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Hope, music and making things happen despite Duchenne

29 May 2020 by Lynnette

By Alex James Hello everyone, I hope you are all very well. This vlog was specially requested by Action Duchenne of me in the flesh, …

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Things like this dont happen….do they?

27 May 2020 by Samantha

by Kieron Sales It's June 2018, I'm in Manchester with my wife, Louise. She's doing a bit of clothes shopping and trying some outfits on. I …

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2 Years since the Diagnosis: Positive Experiences

18 May 2020 by Samantha

By David Taylor. In May 2018, our son Edward (who was 2 ½ at the time) was diagnosed with Duchenne Muscular Dystrophy. I have struggled with many …

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Staying active during lockdown

17 May 2020 by Samantha

By Daniel Miller Since I was small, I have always been fascinated by history and have enjoyed visiting museums, with lots of great museums and …

Staying active during lockdownRead More

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