We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, …
A message from the National Director, Florence Boulton Lock-down has been a time of grief for many, losing loved ones at a time when we are unable …
Guide to setting up your page It's quick and easy to set up a Fundraising Page for Action Duchenne. Just follow the steps below: 1. …
By Duchenne Dad, Kieron Sales Hello again! First of all I’d just also like to say a big thank you to everyone that has taken time to read my …
Sam and Lynnette joined 30 other 80s fans on Lizzie Deeble's 80s quiz night on Friday. It was a great night, with lots of laughs and brilliant …
Matt's story; I will be running 100km (62.13 miles) to raise money for Duchenne research. The research carried out will hopefully slow the …
We are delighted to share Nick's story, where he talks about his 100 mile challenge and the incredible young man who inspires him. My story My …
By Alex James Hello everyone, I hope you are all very well. This vlog was specially requested by Action Duchenne of me in the flesh, …
Hope, music and making things happen despite DuchenneRead More
by Kieron Sales It's June 2018, I'm in Manchester with my wife, Louise. She's doing a bit of clothes shopping and trying some outfits on. I …
By David Taylor. In May 2018, our son Edward (who was 2 ½ at the time) was diagnosed with Duchenne Muscular Dystrophy. I have struggled with many …
By Daniel Miller Since I was small, I have always been fascinated by history and have enjoyed visiting museums, with lots of great museums and …
By Bryan Purdue Hi everyone, hope you are all well and safe! I wanted to discuss what’s happening in the world from my point of view. …
