Check out a new blog from a Duchenne Dad's perspective by the brilliant Kieron Sales. https://duchdad.home.blog It’s a …
Things like this don’t happen to you… do they? – a Duchenne Dad’s perspectiveRead More
Dave’s story
Fundraiser profile Dave Hampton Age 52 Devoted Husband & Father …
Redefining ‘normal’ – disability from a sibling’s perspective
Emily's blog addressed disability from a siblings perspective as her youngest brother lives with Duchenne muscular dystrophy. For those of you that …
Redefining ‘normal’ – disability from a sibling’s perspectiveRead More
Hear from our Skydivers!
12 amazing fundraisers jumped out of planes across the country on Saturday 7 July 2018. They raised a fantastic £9,000 to help us achieve our …
Lots to take away from the PPMD Conference
Last week, Neil Bennett, our new Director of Research attended the Parent Project Muscular Dystrophy (PPMD) Conference in Arizona, …
Spotlight on Fundraisers July 2018
Here are some of our wonderful fundraisers for this month! …
Spotlight on Fundraisers June 2018
Here are some of our wonderful fundraisers for this month! Two new skydivers' pages https://www.justgiving.com/fundraising/tracy-tuck1 …
The Forgotten Voice – living with Duchenne as a sibling
Hazel has written this piece for Action Duchenne to help fellow siblings of young people living with Duchenne to know they are not alone. My name is …
The Forgotten Voice – living with Duchenne as a siblingRead More
Interview with Abbie and Mark Silverman
Watch the dedicated Abbie and Mark Silverman speak with Peter Duffy at their 10th Conference. YouTube Video …
Interview with Jon Powton
Hear from the fantastic Jon Powton when he spoke with Peter Duffy at the #ADConf17 about his life, fostering and living with Becker muscular …
Spotlight on fundraisers January 2018
Jo Gelblum is a serial fundraiser Grandparent who raised £1,984 selling cakes over Christmas. Members of the Marks Tey Silver Threads …
