Eimear is just 15 years old, she lives at home with her parents Deborah and Kevin, and siblings Oran 18, Ciara 17 and Niall who lives with Duchenne …
Sam's kind hearted, generous and thoughtful nature shines through everything he does to support us and our work. Inspired by his good friend Toby …
Shining a spotlight on Sam Heathcote – a very special young fundraiserRead More
We were so very shocked and saddened to hear the news of BJ Doherty's passing in January 2019. BJ was an incredible friend, father and husband, …
A message from the National Director, Florence Boulton Lock-down has been a time of grief for many, losing loved ones at a time when we are unable …
Guide to setting up your page It's quick and easy to set up a Fundraising Page for Action Duchenne. Just follow the steps below: 1. …
By Duchenne Dad, Kieron Sales Hello again! First of all I’d just also like to say a big thank you to everyone that has taken time to read my …
Sam and Lynnette joined 30 other 80s fans on Lizzie Deeble's 80s quiz night on Friday. It was a great night, with lots of laughs and brilliant …
Matt's story; I will be running 100km (62.13 miles) to raise money for Duchenne research. The research carried out will hopefully slow the …
We are delighted to share Nick's story, where he talks about his 100 mile challenge and the incredible young man who inspires him. My story My …
By Alex James Hello everyone, I hope you are all very well. This vlog was specially requested by Action Duchenne of me in the flesh, …
Hope, music and making things happen despite DuchenneRead More
by Kieron Sales It's June 2018, I'm in Manchester with my wife, Louise. She's doing a bit of clothes shopping and trying some outfits on. I …
By David Taylor. In May 2018, our son Edward (who was 2 ½ at the time) was diagnosed with Duchenne Muscular Dystrophy. I have struggled with many …
