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  • About Us
    • Our Purpose
    • Our Strategy
    • What we do
    • Our Impact
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    • Work For Us
    • Volunteer
    • The DMD Registry
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    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Open Space
      • Group Counselling Programme
    • Recently diagnosed
    • Connect with Others
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    • Support for 14-25 yrs ‘Yes I Can’
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    • Highlights from the Action Duchenne Conference 2025
    • Action Duchenne Annual International Conference 2025
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    • Webinar Series 2025
      • Webinar Series 2025
      • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
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Spreading the love with the £2 tweet

February 10, 2021 by Lynnette

Donate just £2 and we'll send your tweet from the Action Duchenne Twitter account to over 6000 followers. It can be whatever you want (as long as …

Spreading the love with the £2 tweetRead More

What a difference a year makes

February 10, 2021 by Lynnette

Blog by Florence Boulton, National Director This month marks the anniversary of the day I joined Action Duchenne. I remember it well, at the Annual …

What a difference a year makesRead More

Rare Disease Day 2021

February 8, 2021 by Lynnette

Rare Disease Day 2021 will take place on Sunday 28 February. It is a chance to raise awareness amongst the general public and decision-makers …

Rare Disease Day 2021Read More

2021 Annual General Meeting

January 27, 2021 by Lynnette

18:00 - 19:00 GMT Tuesday 23 February 2021 via Zoom The Trustees of Action Duchenne would like to express their gratitude for the continued support …

2021 Annual General MeetingRead More

Duchenne Science LIVE launches today

January 26, 2021 by Lynnette

Families living with Duchenne muscular dystrophy (DMD) face many challenges, one being keeping up with developments in Duchenne research. Our new …

Duchenne Science LIVE launches todayRead More

Handmade cards by Bella

January 12, 2021 by Samantha

Action Duchenne is a charity close to mine and my family’s heart. About two years ago I was part of a fundraiser at a Newcastle Falcons game and I …

Handmade cards by BellaRead More

YouTube channel for Duchenne science

January 12, 2021 by Lynnette

We know it is hard for families to keep up with research developments in Duchenne muscular dystrophy. After the success of the 'Science on Tour' …

YouTube channel for Duchenne scienceRead More

New support sessions to help Duchenne families cope with post-Christmas lock-down

January 12, 2021 by Lynnette

Since Christmas, we have heard from many Duchenne families that they are struggling to keep their spirits up. January’s lock-down has come at a …

New support sessions to help Duchenne families cope with post-Christmas lock-downRead More

Run Local (or not!)

January 12, 2021 by Samantha

We’re delighted to partner with RunForCharity to help you take part in hundreds of events. Simply select your region below to find events …

Run Local (or not!)Read More

Support Action Duchenne this January and Save Money with My Favourite Voucher Codes

January 11, 2021 by Samantha

This January, Action Duchenne has teamed up with a money saving website with a twist, My Favourite Voucher Codes. We’re up for winning 20% of the …

Support Action Duchenne this January and Save Money with My Favourite Voucher CodesRead More

Project Engagement & Support Coordinator role

January 5, 2021 by Lynnette

Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …

Project Engagement & Support Coordinator roleRead More

Digital Marketing Coordinator (Support Projects) role

January 5, 2021 by Lynnette

Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …

Digital Marketing Coordinator (Support Projects) roleRead More

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