We are proud to share the news that Kiran Rowntree, from Sheffield, has received a rare award from the Chief Scout, Bear Grylls. Here is the moment …
13 year old receives scouting award for dedication, courage and determinationRead More
Community celebrates GP’s epic 362 miles in 6 days
This weekend marked the culmination of months of planning and preparation by the dedicated community around Niall, Deborah and Kevin O’Doherty from …
Your invitation to the newly diagnosed Duchenne family event
Taking place online on Saturday 23rd October 2021 from 14:00 - 18:00 GMT, this event is a chance for families who are new to the Duchenne community to …
Your invitation to the newly diagnosed Duchenne family eventRead More
Lottery backs ‘All-through Support’ for Duchenne
ON this World Duchenne Awareness Day, we are very pleased to announce that The National Lottery Community Fund has chosen to support our much-needed …
Your invitation to our 20th Conference
Florence, National Director of Action Duchenne invites you to register for this year's Conference Register below for this year's Action Duchenne …
Farewell and thank you to Zac Fargher
It was with some sadness that we announce our trustee, Zac Fargher, has resigned from his position on the Board, and will be leaving the UK in August, …
Drew’s Way First Steps walk
A big thank you and congratulations to new Duchenne parents Molly Pitts and Zak Denny who organised the hugely successful 'First Steps 7 mile walk' …
Trudi’s 50th Birthday Skydive for Action Duchenne
In 2020 Trudi's husband, Steve, bought her a tandem skydive as a present for her 50th birthday. Due to Covid restrictions she had to put it off. She …
Making a difference
It’s not all marathons and mountain climbing, the little things make a big impact too! Thanks to Jess Breeze (Action Duchenne volunteer and Mum …
Register for the virtual conference 2021
Following the success of last year's virtual event, this year’s Action Duchenne International Conference will again take place virtually on 13 and 14 …
610km cycle across Ireland and Northern Ireland
On the 17th and 18th July, John O’Brien is cycling from Mizen Head to Malin Head. A journey of 610km. He is taking on the challenge to raise money for …
Head of Fundraising and Partnerships
Reports to:National Director Type:PermanentWorking week:21 hours per week / 3 day per week Monday to Friday (days to be agreed)Hours:9am to …
