We know it is hard for families to keep up with research developments in Duchenne muscular dystrophy. After the success of the 'Science on Tour' …
New support sessions to help Duchenne families cope with post-Christmas lock-down
Since Christmas, we have heard from many Duchenne families that they are struggling to keep their spirits up. January’s lock-down has come at a …
New support sessions to help Duchenne families cope with post-Christmas lock-downRead More
Run Local (or not!)
We’re delighted to partner with RunForCharity to help you take part in hundreds of events. Simply select your region below to find events …
Support Action Duchenne this January and Save Money with My Favourite Voucher Codes
This January, Action Duchenne has teamed up with a money saving website with a twist, My Favourite Voucher Codes. We’re up for winning 20% of the …
Support Action Duchenne this January and Save Money with My Favourite Voucher CodesRead More
Project Engagement & Support Coordinator role
Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …
Digital Marketing Coordinator (Support Projects) role
Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …
Digital Marketing Coordinator (Support Projects) roleRead More
Light up lockdown
We understand absolutely and completely how many of you are feeling today. This lock-down has come at a notoriously difficult time in the year, …
Christmas Show with Bertie Slippers
Our friend Bertie Slippers, nearly the world's best children's entertainer, has recorded a very special show for our wonderful families to …
Helena sends a Christmas message
Our Patron and phenomenal actress, Helena Bonham Carter sent us this message to share with you; 'Wishing you all a happy and safe Christmas. I …
Action Duchenne sprinkles a touch of magic for brave Duchenne families
The hundreds of children, young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges, which have been exacerbated by …
Action Duchenne sprinkles a touch of magic for brave Duchenne familiesRead More
Holidays after lockdown
A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …
It’s all about the why?
Watch our short video produced for the virtual Action Duchenne International Conference 2020. Thank you to everyone who sent us their messages of …
