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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Support Calendar – What’s On
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • In-Person Support Events
    • Schools
    • End of Life and Bereavement
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    • Save the Date for the Action Duchenne Community Summit 2026 (Previously known as Annual International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

News

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Support Action Duchenne this January and Save Money with My Favourite Voucher Codes

11 January 2021 by Samantha

This January, Action Duchenne has teamed up with a money saving website with a twist, My Favourite Voucher Codes. We’re up for winning 20% of the …

Support Action Duchenne this January and Save Money with My Favourite Voucher CodesRead More

Project Engagement & Support Coordinator role

5 January 2021 by Lynnette

Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …

Project Engagement & Support Coordinator roleRead More

Digital Marketing Coordinator (Support Projects) role

5 January 2021 by Lynnette

Remote working21 hours per week6 months contract£18-20k pro rataLived experience of Duchenne desirable criteria Action Duchenne knows that there is …

Digital Marketing Coordinator (Support Projects) roleRead More

Light up lockdown

5 January 2021 by Lynnette

We understand absolutely and completely how many of you are feeling today. This lock-down has come at a notoriously difficult time in the year, …

Light up lockdownRead More

Christmas Show with Bertie Slippers

24 December 2020 by Samantha

Our friend Bertie Slippers, nearly the world's best children's entertainer, has recorded a very special show for our wonderful families to …

Christmas Show with Bertie SlippersRead More

Helena sends a Christmas message

22 December 2020 by Samantha

Our Patron and phenomenal actress, Helena Bonham Carter sent us this message to share with you; 'Wishing you all a happy and safe Christmas. I …

Helena sends a Christmas messageRead More

Action Duchenne sprinkles a touch of magic for brave Duchenne families

16 December 2020 by Lynnette

The hundreds of children, young people and adults living with Duchenne muscular dystrophy (DMD) face many challenges, which have been exacerbated by …

Action Duchenne sprinkles a touch of magic for brave Duchenne familiesRead More

Holidays after lockdown

15 December 2020 by Lynnette

A blog by Florence Boulton, National Director (Robin by Duchenne Grandad, Julian Smith jpsart.net) As the nights are drawing in and the …

Holidays after lockdownRead More

It’s all about the why?

1 December 2020 by Lynnette

Watch our short video produced for the virtual Action Duchenne International Conference 2020. Thank you to everyone who sent us their messages of …

It’s all about the why?Read More

Christmas Truckers Charity Convoy

1 December 2020 by Samantha

We are excited and super proud to share the story of two amazing gents; Danny Whitmore and Nathan Cowling, who are responsible for the phenomenally …

Christmas Truckers Charity ConvoyRead More

Apply for a charity place

30 November 2020 by Lynnette

Thank you for your interest in taking part in the 2021 Virgin Money London Marathon for Action Duchenne. The London Marathon is the biggest …

Apply for a charity placeRead More

I have so much to share with you

27 November 2020 by Lynnette

A blog by National Director, Florence Boulton ….and we’re back down to earth after the crazy (but exciting) weeks in the run up to our 2020 …

I have so much to share with youRead More

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