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Action Duchenne

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  • Donate
  • About Us
    • Our Purpose
    • What We Do
    • Our Impact
    • Our Team
    • Work For Us
    • Volunteer
    • The DMD Registry
    • Action Duchenne Policies
  • Get Support
    • Register for Support
      • Time Out – A Space for Mums
      • Dads Against Duchenne
      • Grandparents Together
      • Online Group Counselling Programme
    • Recently diagnosed
    • Children and Young People
    • Summer 2026 In-Person Family Days
    • Schools
    • End of Life and Bereavement
  • Community Summit
    • Action Duchenne Community Summit 2026 (Previously International Conference)
    • Highlights from the Action Duchenne Conference 2025
  • News, Webinars and Blogs
    • News
    • Webinar Series 2026
    • Webinar recordings
    • Bite-Sized Duchenne Science Live
      • Facts about Duchenne muscular dystrophy
      • Signs and Symptoms of Duchenne Muscular Dystrophy
      • Diagnosis of Duchenne Muscular Dystrophy
      • Crucial Genetic Terminology
      • Genetics – Blueprint of Duchenne Muscular Dystrophy
      • How is Duchenne Muscular Dystrophy Inherited?
    • Hear From Our Community
  • Support Us
    • Friends of Action Duchenne
    • Upcoming Events and Challenges
    • Give in memory and help us support every family, every time.
    • Organise your own event
    • Fundraising at school
    • Donate by cheque and post
    • Welcome to our Runner Hub

Our impact

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International Conference and community

19 November 2021 by Lizzie Cox

Blog by Florence Boulton, National Director - written in Cambridge just after we finished delivering the Action Duchenne International Conference …

International Conference and communityRead More

Action Duchenne International Conference embodies powerful Duchenne community

16 November 2021 by Lynnette

OVER the weekend of 13 and 14 November 2021, Action Duchenne welcomed families, researchers, clinicians and pharmaceutical companies from across the …

Action Duchenne International Conference embodies powerful Duchenne communityRead More

We are together, with you

2 November 2021 by Lynnette

“Holding it together when I was speaking at the Newly Diagnosed family event” was one of my colleague’s proudest accomplishments this week. We were …

We are together, with youRead More

Project that aimed to combine stem cell and CRISPR technology is a success

28 October 2021 by Neil

We’re delighted to report the successful completion of our research project in Dr Yung-Yao Lin’s laboratory at Queen Mary University of London. The …

Project that aimed to combine stem cell and CRISPR technology is a successRead More

Lottery backs ‘All-through Support’ for Duchenne

7 September 2021 by Lynnette

ON this World Duchenne Awareness Day, we are very pleased to announce that The National Lottery Community Fund has chosen to support our much-needed …

Lottery backs ‘All-through Support’ for DuchenneRead More

We spend 88.7p in every £1 on research, support & education

6 July 2021 by Lynnette

Thank you to each and every one of our supporters for your continued dedication to our aims and objectives. It's important for us to keep you …

We spend 88.7p in every £1 on research, support & educationRead More

National Volunteers Week – a time to say ‘thank you’

26 May 2021 by Lynnette

This is a special week to celebrate and say a huge heartfelt thank you to all of our fabulous compassionate volunteers who give some much of their …

National Volunteers Week – a time to say ‘thank you’Read More

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